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  • #31
    Originally posted by mrskugler View Post
    I love your blog! Keep it up! And your daughter's name is wonderful -- "Good News," indeed.
    49-yr-old, lumbo-sacral SBO with split cord malformation, lipomyelomeningocele, and partial sacral agenesis; walk with one AFO & crutch; self-cath; college professor w/a PhD

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    • #32
      I have a blog which is shared by a friend and colleague. Not on the topic of SB but on 45 RPM record collecting. It can be found at www.theczarsof45.blogspot.com. Enjoy.

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      • #33
        We have a fan page for Ethan!! http://www.facebook.com/pages/Ethan-...81223988579149
        Tomorrow is his tracheostomy surgery very scared over here!!
        Last edited by Katy; 10-27-2011, 10:14 AM. Reason: wrong website

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        • #34
          Mine is www.guineapighotel.wordpress.com

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          • #35
            Reading your blogs inspired me to make my own and here it is
            Not much but it's a start!

            http://dylan-john.blogspot.com/

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            • #36
              Hi there - mine's http://joumaseblerrieblog.blogspot.com. Thanks for all the great links, can't wait to get reading!
              Last edited by Dodger67; 11-09-2011, 06:19 AM. Reason: fixed the URL
              Mom to Richie, born September 2010, spinal dysraphism with tethered cord, S2, lipoma excised 7.5months, AFO, catheterising. My blog joumaseblerrieblog.blogspot.com

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              • #37
                Margot I fixed the url in your post - it must include the "http://" part for the link to work. You'll have to fix the one in your signature.
                Awesome blog btw
                Roger
                Sumus semper in excretum sed alta variat!

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                • #38
                  does anyone have a blog on SB with arnold chiari malformation and sacral meningeocele? and possible hydra. i shall start a blog when ive made my final decision as im 20 weeks pregnant and given the option of a termination.

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                  • #39
                    Ours is http://www.ruths-story.com

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                    • #40
                      I have a new blog http://mindfulmeerkats.blogspot.com
                      Mama to an adorable 4 year old girl with SB, lipomyelomeningocele, TCS, neurogenic bladder & bowels
                      http://www.mindfulmeerkats.blogspot.com

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                      • #41
                        Great! Really looking forward to reading through the blogs.

                        Here's mine. It was originally meant to be about my journey in training to be a Priest, but now mainly about Arthur! :-)

                        http://hannahstheologicalblog.blogspot.co.uk

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                        • #42
                          I don't blog in the normal sense. I am on Facebook and Twitter. I prefer FB.

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                          • #43
                            I feel left out, I use tumblr not BlogSpot!

                            Mine is in my sig though =]
                            22, lipomyelomeningocele, and 2 detetherings. My blog is http://missknittykitty.tumblr.com/ but I only post occasionally about my SB

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                            • #44
                              I've recently started blogging about my pregnancy and all the fun that comes with an SB diagnosis!

                              valiantefforts.wordpress.com
                              Happy mom to Simon - born 1/13/13, myelo SB (S2-S4), hydro & VP shunt
                              http://valiantefforts.wordpress.com/

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                              • #45
                                Put the link in your signature, but don't forget the "http" prefix otherwise the link doesn't work.
                                Roger
                                Sumus semper in excretum sed alta variat!

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