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  • #16
    I started mine to update family and friends at one time instead of constantly repeating myself. It was really awesome when Seth had his spinal surgery (125 miles away from our hometown). I was able to post updates instead of trying to call a bunch of people.

    www.caringbridge.org/visit/sethedmunds
    Nicole - mother to Luke (6) and Seth (15) - lipomyelomeningocele (L3-S2)
    left leg AFO, neurogenic bladder, Tethered Cord Syndrome, syringomyelia
    www.caringbridge.org/visit/sethedmunds

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    • #17
      I also love getting to know other families through the blogs.
      ours is in our signature
      Holli
      Twin boys Alex and Nicholas arrived 3 months early on 5/2/09. Alex was born with SB, L1. We survived over 100 days in the NICU. Both boys are the absolute joy of our lives!!!!
      www.ourdoubleblessings.blogspot.com

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      • #18
        Originally posted by kidsrustx View Post
        I started mine to update family and friends at one time instead of constantly repeating myself. It was really awesome when Seth had his spinal surgery (125 miles away from our hometown). I was able to post updates instead of trying to call a bunch of people.

        www.caringbridge.org/visit/sethedmunds
        That's one huge advantage of a blog for sure, I did the same! I love my family and friends, but it was so frustrating getting text after text and call after call when I had a crying baby just out of surgery! The blog helped soooo much with that!
        Jamie, mom to Conner, Ramya (SB), Deena (OI) and Madilynn (SB) and wife to David. Madilynn was diagnosed in utero with spina bifida and hydrocephalus and Ramya also has spina bifida and hyrocephalus. Check out our blog at www.aworthyjourney.com!

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        • #19
          Yep, I follow quite a few of you already too!

          Mine are in my signature as well, one for K who has SB and the other follows our family in general.
          Frances - Mom to 3 Lovely Girls
          Our Spina Bifida Journey

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          • #20
            Mines in my signature too! I love reading all the blogs. It's nice to know I'm not alone. And that I have this amazing support from people who have never even met us
            Lyla was born 2/17/2010 with spina bifida, hydrocephalus (no shunt), neurogenic bladder, bilateral clubbed feet & dislocated hips.
            http://www.caringbridge.org/visit/lylacespedes

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            • #21
              Non SB related? And I don't post here often... But hey, reading material none the less...

              http://vanillamilfshake.blogspot.com

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              • #22
                I do. Its in my sig. After 5 years I am finally moving it and redesigning this month,
                "All you need is faith and trust... and a little bit of pixie dust!" --Peter Pan
                Read about our lives and travels on my blog Mom Off Track
                I am on twitter if you ever need to get me quickly or just want to chat about something!

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                • #23
                  Mine is also in the signature...Love reading about everyone's LO's!
                  Selina
                  Mommy to Mason (10/10/06) and Madison (6/25/09) SB L4, VP shunt, MOMS trial

                  www.ourlemonadestandblog.blogspot.com

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                  • #24
                    Growing from the Obstacles: http://atalw.blogspot.com!

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                    • #25
                      Blog

                      My wife who also has SB has a blog at http://marysdisabilityblog.blogspot.com

                      Cheers!!
                      Andre

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                      • #26
                        hey, I have a new blog, http://lifeloveandspinabifida.blogspot.com/ So far it has only one post, but i am posting another one tonight. Enjoy!
                        Lindsay

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                        • #27
                          Yes, I do have a blog. My husband, supercrip suggested that I join this forum to present my blog. My blog is about my life as a person with spina bifida and hydrocephalus and my experiences. To read my blog visit: http://marysdisabilityblog.blogspot.com/
                          Regards,
                          Mary

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                          • #28
                            Thanks for asking! Our blog for Landen is www.littlelanden.blogspot.com. Check it out!

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                            • #29
                              Welcome aboard, RonandTosh! Love your blog -- that Landon is a handsome fellow!
                              49-yr-old, lumbo-sacral SBO with split cord malformation, lipomyelomeningocele, and partial sacral agenesis; walk with one AFO & crutch; self-cath; college professor w/a PhD

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                              • #30
                                mine is http://mrskugler.blogspot.com/
                                ~Lisa

                                Wife of William, Mom to Evangeline (due September 2011) http://mrskugler.blogspot.com/

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