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FB Spina Bifida Connection vs. here

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  • FB Spina Bifida Connection vs. here

    Looks like everyone is gone from here these days. I have visited the FB site, but there's no searching capability. I just found another SB site on FB it has a search feature, not sure how well it works yet. I miss the first people I met on here. Good to see Doger is still working on here. If the FB site could be linked to here, and have a search feature, it'd be such a great wealth of information. We have discussed it all here.

  • #2
    This site was unfortunately down for some time, since it was fixed with new software the traffic has not come back up to the usual rate. I too prefer this forum as posts never dissapear and conversations can continue indefinitely. Facebook is not good as it doesn't keep a fully searchable history. The privacy of this forum is also far better than Facebook. I don't really trust FB with my privacy as they are by definition profitting from posts and user activity, which they analyze to sell advertising.
    Roger
    Sumus semper in excretum sed alta variat!

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    • #3
      I am not on facebook at all....to old in the tooth to be doing with it all!
      I do come on here now and then and no new threads, esp in the children section which is what I need. if it had more traffic I would use more.
      its a shame as there is a lot with help and experience on here.

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      • #4
        We'd have more traffic if folks would just post something whenever they visit here
        Roger
        Sumus semper in excretum sed alta variat!

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        • #5
          I definitely miss this site. I keep checking off and on hoping it gets to jumping again but it doesn't. I know I need to be a more active member as well. I will try in the coming weeks. I too appreciate my privacy and FB is not an option for me. Miss talking to other adults with SB.

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