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  • New member from the Philippines

    Hi I am Ruth I am really thankful that I have found this site. I have a beautiful 15 months old daughter who has SB. She has Congenital Hydrocephalus and Myelomeninggocele. She already has a shunt and we are still waiting for her myelo repair soon.

  • #2
    Welcome Ruth
    It's interesting that her myelo repair is being done so late. Most have it done within a day or two after birth.
    Roger
    Sumus semper in excretum sed alta variat!

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    • #3
      Welcome Ruth! I hope you get that surgery done soon. What is your daughters name and what is she doing?
      Benjamin, born 10/2012 with SB L5/S1, loved by his parents and his older brother and sister (born 2006 and 2010)

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      • #4
        Hello Ruth!! I am new here too!! My name is Janeth! and I decided to join for my nephew.
        He was born with myelomeningocele and other complications!!

        hope everything goes well with your baby girl

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        • #5
          kumusta kabayan? Ok lang ba anak mo ngayon?

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