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  • #16
    Hi Vorlina, welcome on board.
    I'll send you a private message explaining how to get access.
    Roger
    Sumus semper in excretum sed alta variat!

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    • #17
      hi how can I get into the adult section?

      my name is Danielle I'm 25 and was born with Spina Bifida Mylomeningecil so eager to meet you all I have been looking for a place to talk to people who understand what I go through in my life

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      • #18
        Hi, Danielle! Welcome aboard.

        To join the Adults group, go to the User CP (left side of the brown toolbar), look down the left to Networking and under that, click on Group Memberships -- you'll see a button to check to join the adults group.
        49-yr-old, lumbo-sacral SBO with split cord malformation, lipomyelomeningocele, and partial sacral agenesis; walk with one AFO & crutch; self-cath; college professor w/a PhD

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        • #19
          Hi there,
          I've recently been diagnosed with spina bifida occulta too and I'm 41 yrs old, was a bit of a shock for me too, saw the Neurosurgeon yesterday and felt patronised and ia though I was bothering him. I'm happy to chat to you about this xxx
          Smile it cofuses people

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          • #20
            Originally posted by Vorlina View Post
            I'm having some trouble getting into the Adults section - apparently I'm not authorised for it. Is that something I can request (being 34, I think I'm just about adult...)
            I have Been triyng to getting in to the Adults section to.

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            • #21
              PM with procedure to access Adults section has been sent
              Roger
              Sumus semper in excretum sed alta variat!

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              • #22
                Does this section need to be revised? I'm lurking for the first time in a while and the site looks quite different (I do like the colors, though).

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