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Go Back   Spina Bifida Connection Support Forum > Spina Bifida Community Central > New Member Help Center - Introduce Yourself

New Member Help Center - Introduce Yourself Are you new here? Unsure where to post? Stop by here and introduce yourself. We can help you find your way around.

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  #1  
Old 07-27-2010, 10:08 PM
mattspaparazzi mattspaparazzi is offline
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Hello everyone!! I have a 4 year old son who was born with sb. he is a l3-4. He has a walker and afo's. He has a vp shunt as well. He is doing pretty good despite the sb. Very happy little boy. God has done alot for us. Hope to get know other parents or caregivers who understand what sb does to children and families. thankyou,stephanie.
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  #2  
Old 07-28-2010, 01:07 AM
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smoop smoop is offline
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Hello! I have a daughter who will turn 5 next week. She also functions in the L3-4 range, has ACMII, shunted at 3 months (no problems). Analise wears KAFOs (or occasionally AFOs) and walks with loftstrand crutches. She's also able to walk w/o the crutches as long as she's wearing her braces (but she's a long way from being able to ditch her crutches all together). It's nice to meet you!
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Now faith is being sure of what we hope for and certain of what we do not see. Hebrews 11:1
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  #3  
Old 07-28-2010, 07:02 AM
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Dodger67 Dodger67 is offline
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Welcome!
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Sumus semper in excretum sed alta variat!
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  #4  
Old 07-29-2010, 12:50 AM
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Lifeisgood Lifeisgood is offline
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Welcome!!! I am 31 with SBO and a tethered spinal cord from a lipoma. Glad to have you on board!
I love your screen name too!
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  #5  
Old 07-30-2010, 12:26 AM
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Cara Cara is offline
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Hi I don't have sb but am madly in love with a guy who does so I'm a little new to this world. Just felt I should know more about it.



Cara
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  #6  
Old 07-30-2010, 02:46 AM
Jill Jill is offline
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Welcome! I have a 6 month old boy with SB and two girls.
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Mom to R (March '06); C (May '08); and K (Jan 15, 2010, SB @ S1/S2)
http://thelittlekingsley.blogspot.com/
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  #7  
Old 07-30-2010, 06:42 PM
n3rdchik n3rdchik is offline
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Welcome!

glad you are here
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Mama living in testosterone chaos - Kepler(9), Anson(6), and Sagan(4 months).
Sagan's Journal about living with lipomyelomeningocele
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  #8  
Old 08-02-2010, 05:04 PM
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Emm Emm is offline
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Default Hallo Matt

Welcome to this forum.
I'm 75 - soon to be 76. and am sbm.
Lots of good chat, advice etc. on here, just join in or ask any questions.
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  #9  
Old 08-03-2010, 12:33 AM
hope&faith hope&faith is offline
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Another hello. I have twin boys, just over one year old. Alex has SB-L1.
Glad you found us!!
Holli
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Twin boys Alex and Nicholas arrived 3 months early on 5/2/09. Alex was born with SB, L1. We survived over 100 days in the NICU. Both boys are the absolute joy of our lives!!!!
www.ourdoubleblessings.blogspot.com
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  #10  
Old 08-03-2010, 01:10 AM
Kate Kate is offline
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Welcome! I have 6yo twins, a 4yo, and a 7 month old with a lipomyelomeningocele (SBO).

This is a great place for info and support!
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