Barb
11-10-2007, 06:17 AM
The goal of the Hydrocephalus Database Project is to create a national registry that will enable the Hydrocephalus Association to collect, store and synthesize information on the diagnosis, treatment and incidence of hydrocephalus, as well as its lifelong impact on individuals. Currently, there are no accepted statistics on the incidence, treatment protocols or long-term outcomes of hydrocephalus. With your help, that is about to change.
The first step of the Database Project is the launching of the Hydrocephalus Association Survey in an effort to collect comprehensive information from individuals and families dealing with hydrocephalus. By completing the survey, you will be helping the medical community, researchers, doctors, agencies and the Hydrocephalus Association identify better ways to treat hydrocephalus and provide improved medical, social and educational services and, ultimately, achieve better outcomes. Our goal is a database of at least 5,000 people, and it all begins with you.
Click here to take the survey! (http://www.hydrocephalusdatabase.org/)
The first step of the Database Project is the launching of the Hydrocephalus Association Survey in an effort to collect comprehensive information from individuals and families dealing with hydrocephalus. By completing the survey, you will be helping the medical community, researchers, doctors, agencies and the Hydrocephalus Association identify better ways to treat hydrocephalus and provide improved medical, social and educational services and, ultimately, achieve better outcomes. Our goal is a database of at least 5,000 people, and it all begins with you.
Click here to take the survey! (http://www.hydrocephalusdatabase.org/)