Huge inspiration....

[melissa3075]

I tell you what, when I first found out this past Monday that my unborn baby girl has hydrocephalus/spina bifida my heart sunk to its lowest low. I knew little to nothing about either of these conditions and have never known of anybody that had had them. My mind started racing and when I heard all of the medical terms from my doctor - the worst images popped up in my head - When I heard hydrocephalus, I was thinking deformed head, mental retardation, and poor quality of life - When I heard Spina Bifida - I had every doom and gloom scenario pop into my head as well! I did a search on youtube and found some wonderful videos of children with hydrocephalus and spina bifida and they are amazing and the videos, along with this forum, have really raised my spirits about my daughters future. I wanted to share these links with others that are new to SB, it really puts things in a whole new perspective for me.

http://www.youtube.com/watch?v=LYZqKlYbdeI

http://www.youtube.com/watch?v=vRFzTlAiAaA

http://www.youtube.com/watch?v=MiHI259f2NY

http://www.youtube.com/watch?v=95V5IF2dRxs&feature=related

[LisaJoy]

Thanks for sharing those -- they made me smile! It may be a cliche, but it is still true that a picture is worth a thousand words.

Hold on to hope -- we are here for you.

Lisa

[Sheena51985]

Hold on to hope


those 4 words alone are amazing to read..hope is the best thing you can have in a situation like this..all you can do is hope for the best and have faith that everything will work out the way it's suuposed to..and yes, as said before, we're all here for you

[ollieholmes]

There are some other nice ones out there if you search. Ive always liked this one, nice to see a celebrity backing a charity:
http://uk.youtube.com/watch?v=g48XwVhPPMw&feature=channel_page

[lisawalker23]

hi i found out that my daughter has sb and hydrocephalus at my 20 wk scan it came as a huge shock to me too as it dosent affect anyone in my family or my partners family so we dont understand y this happened ive spent months blaming myself for her condition as i feel ive done something wrong..

some one told me that things happen for a reason we dont know why but they just happen..
also we must be really special people because normaily if there is a problem with our unborn children our bodys normaily reject it which in our cases havent happend so our daughters are fighters if they can get through this they can get through anything!!

im not giving up ever on the fact that she may walk as i know some one whom has a son with the same conditions as us... she was told he would walk and he would need to be catheritized but guess what.......

hes walking about a little bit now and he dont need his cathater any more..

so when ur feeling down or feel like giving up hang in there it will all be worth it in the end all the best and im here if you ever want to talk

take care many thanks miss L walker.

[Barb]

I am so glad that you found those and us. That is why I think having the pictures at the top are so important. We are all active, fairly normal, people :) and it helps a ton to see that

[dahliafaolan]

Hey guys. I just wanted to say that things do in fact happen for a reason. if you're ever feeling down about your situation, please look up my thread Heaven's Special Child

[Gymp]

That Noah looks like a cool kid...

Gymp