celticwinter2526
04-23-2010, 08:46 PM
mom of a 15 month old boy with spinabifida.
i was recently asked by my community to help support and answer questions for another family who just had a baby girl with a t12 lesion and arnold chiari. i just tried to get in touch with the family today to find out they were taking the baby girl off of life support. she could only breath on her own for 10min at a time and would have spent the rest of her life in a hospital. i feel very bad for the family but on a more selfish note. this was the first time that it hit me a year ago we could have been forced with the same desicion. i guess god stepped in for my son but its still hard to finally get hit with the truth that not every kid does as well as my son has...it seems to be the opposite in fact that many more children still die from complications than live...and this baby was seen at yale,which is one of only two hospitals that take care of spina bifida births in new england.....sorry to go off. i just needed to get it out. like i said it was a crappy day
i was recently asked by my community to help support and answer questions for another family who just had a baby girl with a t12 lesion and arnold chiari. i just tried to get in touch with the family today to find out they were taking the baby girl off of life support. she could only breath on her own for 10min at a time and would have spent the rest of her life in a hospital. i feel very bad for the family but on a more selfish note. this was the first time that it hit me a year ago we could have been forced with the same desicion. i guess god stepped in for my son but its still hard to finally get hit with the truth that not every kid does as well as my son has...it seems to be the opposite in fact that many more children still die from complications than live...and this baby was seen at yale,which is one of only two hospitals that take care of spina bifida births in new england.....sorry to go off. i just needed to get it out. like i said it was a crappy day