I don't know where to post this...

[NerdaliciouS]

It isn't really spina bifida related; I don't think? It could be, but I don't know yet. In earlier posts, I'd talked about alot of lower back pain and hoping that I didn't need to go for another detethering because of previous experience.

I ended up going in and seeing a neurosurgeon and the original pediatrician. And now I'm POSITIVE I've posted this elsewhere, but that's okay; refresher. :)
The pediatrician was looking over the blood test my gynecologist sent me for, and I guess they didn't test the ... hemoglobin? Did I spell that right? I don't know, but the blood count or whatever. So I got sent for that. They called me back later that night and told me I HAD to come in the next morning. So, I did. I guess there's an infection in my body. My blood is messed! They didn't explain it very well. But, I had to go for a nuclear test? I don't know what it's called. They inject you with radioactive stuff and make you lay to get scans done. I'm still waiting for this to come in and HOPEFULLY the doctor will call today seeing as I got this done last week. I guess it shows problems with bones, muscles, and nerves? So frustrating waiting!!!!!

Anyway, my parents are freaking out, thinking it's cancer. Which inturn is freaking me out because my nana just passed away from spinal cancer? I guess that's what you'd call it. Unless you want me to get all technical and call it mets and say it moved! ...Anyway, that's starting to scare me.

Has anybody else ever had to go for one of these tests? (I'm sure someone has!) Did they find anything... Abnormal? They're worried with me because I have a... I guess you'd call it a cyst on my lower back, right under the scar. And I get them on other parts of my body and blah blah blah. So, infection!

Does anyone know how to cope with all of this? Because this is just one of the many, MANY things on my plate, and it's driving me crazy. I know soooooo many people have worse things than I do, but sometimes you just HAVE to worry about yourself, and I'm quite literally going insane. Halp! And... I'm ranting. I have no idea what I'm asking really. All I know is things are freaking me out! Ack! Damn you life!
:connie_mini_lalalal

Have you ever felt like you'd rather just... die... than deal with stuff anymore? I really don't want to, but it sounds alot better than dealing with stupid stuff that's never ending and just keeps having more things piling on and on and on! andddd breathe! -_-

[LisaJoy]

The only nuclear imaging scan I've ever had was for gallstones. They do that when your bloodwork shows your liver enzymes are off, because gallstones/gallbladder disease is the first thing they want to rule out. However, I'm sure that nuclear imaging is used for all kinds of other things, too.

Next time you see the doctor, MAKE him/her explain everything to your satisfaction. If you don't understand, ask again. You have a right to understand everything. If you're worried you'll be too nervous to ask questions or remember the answers, ask your mom or a close friend to go with you to help.

Do you have your doctor's email address? You could always try emailing with a list of follow-up questions.

[sean]

I had some nuclear imaging done to look for stomach ulcers. I was given a big pill, it had to be triple signed before they took it out of the packet,they were fully protected,gloves, masks. I had no side effects (glowing in the dark), no ulcers.
A neighbour had the test your having??? (looking for an anurism?). She was told not to share drinking cups or a toilet seat for a few days, otherwise it was all painless.
Breathing is good!!!! I know easy to say, be patient, wait for results.
Thinking of you, hang in there.
I write a list of questions way before an appointment, I know my brain to be constipated at the time of appointments and tests. I don't care how stupid they may be, as long as 'I' get the answers 'I' need. More power to you. sean.

[Summer25]

Could it be a renal scan? I have had numerous renal scans done. The iv isn't fun, but all you do is lay there. You need to find out what they are looking for and where.

[NerdaliciouS]

Nah, I guess I know what they wanted to do. I'm just frustrated with everything. Sorry about that. Just a rant basically.