- MACE and indigestion or heartburn
- When did you start using a catheter?
- state schools or special needs schools??
- SB related organisations directory project
- Hannah STANDS!!
- Leg pain
- Foot injuries
- Minimally invasive
- Syrinx
- Spinal Cord Stretch
- Mri
- NTD's no.1 birth defect worldwide?
- Diaper rash?
- AFO troubles
- Angel...looking for docs in Memphis
- Health insurance for kids with Spina Bifida
- An unfortunate error by our pediatrician
- complementary remidies and tips
- Different Sized Feet = Lots of Shoes!
- Having trouble
- exercise
- Paralyzed rats walk!
- Epidural firbrosis
- Can any 1 help!
- ace pocedure
- Appendicostomy (Malone/ACE) experiences
- Developing sb?
- SBO Worsen with age?
- Kaiser v/s other Bay Area providers for the first year of treatment
- Problems with our Coloplast caths
- Adult Tethered Cord Surgery
- Telemundo "Triunfadores" video on YouTube!
- Should i continue cathing?
- Complications from a Tethered Cord
- vitamins....
- 33 weeks and the baby is kicking:)
- How did you cope with pregnancy?
- finnally got some pics of kyle!!
- Pulling to stand....
- Slipped Upper Femoral Epiphysis
- Spina Bifida Occulta
- Aspirations!
- Chait vs ACE
- Pulsed Irrigation Evacuation
- New here - advice on urologist recommendation
- How is your lesion determined?
- Corpus Colloseum
- Infant car seat?
- TA - need some advice
- SB Myelomeningocele. Loss of sensation over the years.
- Non anti-biotic help for UTI's
- Update on me..
- Did you lose ability to walk as you grew up?
- Finally have a care team in place
- Tread Mill Exercise
- Hannahs Gait Trainer!
- Mitrofanoff Surgery + Detethering Surgery
- Cold foot?
- Question on Med Waiver Program
- Worried.. what if medicine fails to control UTI
- 19 yr old not cathing when needed
- From Mother to Child
- Can you move your eyes?
- What a great Christmas gift!
- Legal action???
- Discrimination??
- 60 minutes -Growing body parts
- Back pain due to scoliosis?
- Symptoms of tethered cord?
- Arnold-Chiari malformation type 2 questions
- Cincinatti's Children Hosp. Bowel Program
- Questions regarding independent living
- hurt to the touch?
- cellulitis
- Baby runs hot.
- Excellent News!
- Have shoes if anyone wants them
- completely confused
- Question for adults w/ SB or parents of older children with SB
- Clubbed Feet
- Help! Latex-free baby items?
- SB Conference
- Yet another diagnosis!
- Does anyone get this?
- Confused about new MRI
- Does anyone know what a sour smell in feces is from?
- hi im new
- What is chiari malformation?
- Prophylaxis Antibiotics For UTI
- Back Pain...
- handicap placard?
- Free catheter samples (US only)
- Possible kidney problems! Scared!
- Syrinx found on her MRI
- AFO's
- Hernias!!??
- Hi
- Cath'ing Question
- OT coming tomorrow
- Problem with bowels...toddler trouble!
- Catheterization Question
- Wheelchair Sports
- Questions about cathing a girl
- Feb. 17!!!
- Sit-Ski
- Anyone and everyone with Myelomeningocele..I need your help!
- Pins & Needles
- Overdue or planned c - section?
- Shunt surgery
- Re-Introduction and Best catheters?
- Taking step with walker!
- Lyla arrived!!!
- Newborn and bottle nipple
- extreme tingling in my knee..level L4/L5
- Any Shriner Sponsors out there?
- Children's Hosp Los Angeles
- wondering what age to expect what?
- Erin Odessa Page 8-30-01 - 2 - 20 -10
- Oh boy!
- Questions
- congenital scoliosis?
- lumbosacral region of spine
- Thanks to the mommies and daddies!
- Housing Needs??
- Mace/Monti surgery
- MRI Results
- Pain Management and its Pitfalls....
- Having Lyla Home!
- Screening advice in future pregnancies
- My son's physical therapy...
- Feet
- Afo
- babies with sb and scoliosis?
- Dislocated Hips?
- Stool consistency??'s
- update on adoption plans
- any ideas on how to raise money to get to the international SB conference?
- Some yay, some nay
- Flying long distance - toileting on the plane
- Levels? No clue...
- cathing almost completely on her own!
- Cathing
- What to expect?????
- Any Help Appreciated!
- Scar tissue?
- Sterilizing catheters?
- Advantages to a SB Clinic
- Bladder surgery
- Fussy newborn???
- Ask the Dr.
- Sandwich, England
- MRI results
- Lyla Update!
- Catheters, Urodynamics, and UTI's?
- Head tilt
- circulation
- Urinary Incontinence solution BESIDES SURGERY
- Valproic acid
- blister treatment on feet
- 39yrold female w/ SB. Here for support.
- two types of sb ??
- question for adults with SB...
- Cavus and valgus...Surgery...Recovery
- Weak Vastus Medialis Oblique & Tight Iliotibial Band
- tether or growth?
- Update on Urinary Incontinence issues
- walking
- Constipation
- Augmenation.. is there an alternative??
- Handcycling
- solids
- UTI Symptoms
- Motion Picture Health
- Sweating
- Cecostomies, ACE, etc....
- Question for everyone
- How to get son to stay in wheelchair on playground
- Anyone from SoCal: there is a bulldog puppy with SB looking for a home
- Hi
- Renal ultrasound
- Also about renal ultrasounds
- SB Books???
- Toenails???
- Weird question about Diastematomyelia
- riding a bike?
- Afraid of the people around you knowing of your incontinence issues?
- Flaxseed
- What do you do when you have accident away from home?
- Pigeon-toed- what to expect?
- I have a few questions.......
- Botox for tight muscles/tendons?
- KAFO's vs AFO's
- lipomas...
- Mobile with new stander!!
- Ouch!
- Advice, son's incision from rods won't heal
- UTI questions...
- Prone to infections?
- SB occulta/bladder/bowel probs classed as a disability?
- latex
- Got different size feet???
- question for adults with SB...
- Vitamin D Insufficiency
- How to get nursing care...w/o medicaid ?
- Scans during pregnancy
- "Mild spina bifida???"
- Blister on toes - what to do when they go manky?!
- Shunted syrinx ?'s
- Lipomas and pants?
- Wound Vac
- Weight
- Venting!!!!!!!!
- Transition to baby food
- fecal impaction
- Latex/Food Allergy
- UTI & Strep
- My left foot
- Q's and concerns regarding travelling with a friend who has spina bifida
- I'm writing a book or two, or three...
- More latex ?s
- Baby Michael is home and I have a ? for you all
- Question about ACE/MACE/Cecostomy
- Spina Bifida documentry
- urodynamics / septra / cathing / neurogenic bladder questions
- does spina bifida classify a child as "disabled"?
- burned feet
- A bit embarrassing!
- Brock Waidmann little movie star :)
- Strep
- Why exactly?
- Twister Cables
- First SB Clinic
- Dyscalculia
- sticky suggestion
- how do you know when.....
- Update
- Insurance woes and stress
- Fragile
- Stooling Issues
- Climbing the stairs
- Dramatic Assymmetry...
- Interesting Textbook Link about the different NTDs
- Question about Crede maneuver
- Orthopedic surgeon
- Heading off to urodynamics test today with baby
- spina bifida clinic
- Do I need to move?
- Holy AHH!
- Circumcision
- What could be wrong with her...